Swedish Presidency of the Council of the European Union

The Nordic Rare Disease Summit 2023 brought together experts and decision makers, building on the success of the first Nordic Rare Disease Summit in 2021. We were particularly pleased to arrange the Summit in Stockholm during the Swedish EU Presidency.

A key to improving overall strategies for rare diseases in the Nordic countries is to ensure they are aligned with developments in European healthcare. The European Commission’s work within rare diseases plays an important role for the Nordic countries when developing policies and solutions to shorten time to diagnose, strengthen the empowerment of patients and ensure access to innovative treatments.